An intimate documentary film offering a behind-the-scenes peek into life with delayed diagnosis of endometriosis and the affected pain.
Just Your ( . ) - Harmon, 2023 - 29 minutes
SYNOPSIS
The average length of time to an endometriosis diagnosis is 7-10 years.
Mandy’s not sure what’s behind her long-term “period issues.” It’s been 11 years now and she’s desperate for answers.
UPCOMING EVENTS
UPCOMING EVENTS
Salt Lake Film Society
111 E Broadway, 300 S Salt Lake City, UT, 84111
Dec 14
One night only. Premiering event at Broadway Centre Cinemas.
FREQUENTLY ASKED QUESTIONS
Whether you menstruate or are a friend or parent to someone who does, here is some quick Endometriosis 101.
The content here is for informational and educational purposes only. It does not take the place of medical advice or treatment from a physician. Readers should consult their own doctor or a qualified health professional for specific health questions and concerns.
Endometriosis is an incurable, chronic whole body disease, where abnormal tissue forms lesions, nodules, and cysts on organs and structures throughout the body. It is primarily associated with inflammation and intense uterine pain.
What is Endometriosis?
Why does it matter?
Despite an estimated economic burden as high as $78–119 billion annually, endometriosis is under-researched, undervalued, and consistently ignored, often for years. You might not have heard of it, yet you’re likely to know someone who has it - endometriosis affects 1 in 10 women and menstruators.
Why is it under-researched and under-funded?
Despite being about as common as diabetes and heart disease, endometriosis reflects the same gender bias in research funding seen in other “female-centered” diseases, garnering only a fraction of the support allocated to conditions that affect both genders. AKA, patriarchy, baby!
As a systemic disease, it’s starting to be recognized as a public health crisis. In some countries, patients with an endometriosis are eligible for disability. Yes, it can be that debilitating.
Where’s the movement at now?
I know someone with endo. How can I best support them?
You’re amazing! Folks with endometriosis likely need help, but might have a hard time asking for it (side effects of “invisible illness”). Visit our full FAQ page for more information and tips on how to help a loved one.
For more questions and answers, check out the full FAQ here.
MORE RESOURCES
Think you might have endometriosis? Know someone that does? Here you can find connections to wonderful organizations to get support.
Just Your ( . ) film is not associated with the following organizations, these are links to find more information from the filmmakers, aka, what Mandy wish she’d known about years ago.
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Nancy's Nook
Patient-led network aiming to educate patients, practitioners, and their loved ones about endometriosis with evidence based information and resources. Members include endometriosis patients as well as physicians, other healthcare practitioners, husbands, partners, parents, and friends.
One of their resources includes an ongoing list of certified endometriosis excision surgeons in the U.S. and globally.
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The Endo Coalition
Patient founded non-profit aimed to raise awareness, promote reliable education, and increase research funding for Endometriosis centered by guiding principles: INFORM, EMPOWER, RESILIENT, and INSPIRE.
They host The Endo Co Patient Support Group to provide an opportunity for endometriosis patients to share personal experiences and learn coping strategies. Groups are held the last Thursday of every month @7:30 PM EST.
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Project Endo
Project Endo is a bi-partisan movement informing health care providers and policymakers through storytelling, original content, awareness tools, and educational resources - they are the main organization behind the film Below the Belt (Cohn, 2023),
Through their School Nurse Initiative, you can make an immediate impact by sponsoring a nurse to receive a toolkit (starting at $35) that educates on endometriosis.
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EndoFound
Engaged in a robust campaign to inform both the medical community and the public, the Endometriosis Foundation of America nonprofit strives to increase disease recognition (emphasis on the critical importance of early diagnosis), educate the next generation of medical professionals and their patients, facilitate expert surgical training, and fund landmark endometriosis research.
You can find some of the latest news in the endometriosis world here.
The study was a great success, enrolling a total of 626 women, 527 from Utah and 99 from California. To date, nearly 30 papers have been published. Read the newsletter linked for more information.